Friday, January 23, 2015

Fungus and prayer requests....

Yes, that about sums up life here right now...fungus and prayers.

We took Serenity in for her "pre-op" appointments on Wednesday. "Pre-op" seems a little too serious for the procedure we were to have today - she needs a sedated hearing test to be able to accurately determine where in her ears there is a hearing problem.  That way the right type of hearing aid can be used.  It is strongly suspected that it is her middle/inner ear, but they need to know for sure. 

The day on Wednesday started off with traffic worse than normal, so we were late. :(  The first appointment went fine, other than Little Man is getting pretty squirrely at 8 months old.  The poor guy has been to more doctors' appointments than any other child because he has to go to all the appointments until he decides to start eating Gerber foods and not be so cranky.  It isn't fair to leave him with others who cannot feed him or comfort him!  Anyway.... Then we moved on to a nurse visit because one little area on her incision is not healing well.  That was a little traumatic for Serenity.  Deep breath....and move on to the last visit.  It was one of those days we were counting the minutes until we could head home.  This was just the doctor peeking in her ears to make sure they were clear.  No problem, right?  Uh, yes.....a problem.  One of her ear tubes had plugged.  Not good.  Then the doctor asks - and only those of you with an active tornado like Serenity will understand the panic that washed over me - "Does she stick things in her ears?....Like cotton?"  Well, I can imagine Serenity sticking LOTS of things in her ears - as she sticks things everywhere else!  (Her favorite trick right now is to pop her "nose" off her trach and then plug the hole with her thumb to see how fast I will come running as I hear her struggling to breathe!)  I think my answer to the doctor was something like, "Uhhhhhhhhhh.....".   He pulled out the massive electronic scope to see better.  He ended up pulling out the plugged tube to find that there is a fungus growing in her ear.  Not that uncommon (we have done that before with Romeo), but it can be very hard to thoroughly get rid of the fungus.  We have 3 weeks worth of meds twice a day and then will go see the doc again in 4-5 weeks.  If it is clear, we will reschedule.....which is making the test probably around the end of March, beginning of April at this point.  Deep sigh.  After grumbling a bit in prayer, I just left it with trust in Him that there is a plan.  It makes for an easier morning this morning! 

Please pray for quick healing for her.  Pray for the schedule as it will begin to be put together for the spring - Serenity's next skull surgery, preparation for Hope's surgery on her face, more botox injections to ease Grace's CP.  So many good things - with so much pain attached.  I am so very thankful as always for the blessings of amazing doctors and hospitals....what grace we have been given.

I also have a prayer request for this beautiful little man:

This is Aaron.  He is currently in a large Asian country.  He has complex heart problems.  It has been determined that the surgery he needs cannot be done in his country.  However - Praise the Lord! - he was able to have a shunt placed just today that will help.  But he is in the ICU alone.  No mom to sing over him.  No dad to hold his hands.  By the rules, the Nanny in this picture cannot be with him. 

This is just killing my heart.  He is tinier than Little man by 12 lbs, yet he is 5 months older.  There are so many children I stop and pray for....but then some are just like a kick in the stomach and I just can't catch a full breath.

Please pray for comfort and peace for him.  Pray that the Lord is singing over him.  Most of all, please pray that a family steps forward in faith to make him their own. 

Until He comes....

Wednesday, January 14, 2015

Prayers answered and PA!!!

Serenity passed her swallow study - thank the Lord!  We need to thicken her drinks at half strength for a week and then we are back to normal!  I am ridiculously relieved about less thing is always good, right?

Also, we received PA from China for Jillian and Brooke!  This is Pre-Approval to continue the adoption.  I am also ridiculously excited about this.  One step closer to our precious new ones. 

And the last thing I am ridiculously pleased about...a sweet picture of Hope.

I am truly blessed!

Friday, January 9, 2015

Prayer Request

On Monday, Serenity is going to have a repeat swallow study.  When they put the trach in, they did a swallow study in the hospital and saw that a small amount of fluids were going in her lungs when she drank.  This is obviously not good!  As a result, we have to thicken all her liquids to a "nectar" consistency.  This wasn't totally new to us as Mimi has to have thickened liquids if she tries to drink something.  (Which she does not unless we make her.) 

It really isn't a big deal in the scheme of things, it is just a hassle.  Kinda that "one more thing" hassle.  Serenity drinks a lot .... and each time it has to be thickened.  We also have to be vigilant about not leaving cups around that she can drink out of - even more so now because she is always on the hunt for them.  She does not like the thickened liquids and I can't say that I blame her!

Anyway, on Monday they will do another swallow study.  Would you join us in praying that she has adjusted to the trach and no longer needs to have the thickener?  It would just make the day-to-day a little easier!

A fun picture for you - though not the best quality:

That happy face would be hope in a swing!  AMAZING, huh?  I have been praying for over a year to get an indoor swing.  I knew this would  be an amazing "therapy" tool for all the girls, but especially for Hope who has just never had any "sensory" integration. The problem?  To get all the pieces we would need the price tag was almost $400.  Gulp.  I asked the Lord to provide, if it was His plan, but just never felt free to spend the money on it.  We know that every dollar belongs to Him, so if we don't feel peace, we don't do it.  At Christmas time, we almost bought it anyway...we just felt it would be so important...but just couldn't bring ourselves to go against what we don't feel fully comfortable with - especially with praying for every dollar needed for the new adoption.  So, I just laid it at His feet. A week or so later, I was discussing it again with my mom as The Helper was listening and she piped in, "Hey, Mom, you know they sell swing hangers that wrap around tree branches for $25?"  WHAT?  Sure enough, she showed me in a catalog.  The design of our manufactured home has "exposed" beams between some of the rooms....and they just fit around the last one I tried.

Thank you, Lord, for always providing!  

Add an outdoor swing...and TA DAH!  We are still praying and searching for more of a hammock style swing that Grace can lay in....but I am thrilled for this right now.  Serenity LOVED it - of course!  Mimi wanted nothing to do with it.  And Little Man....

He squealed and laughed until he was worn out! Happy day!

Finally, Mama V ~  I just loved your comment about visiting the blog to see Brooke's beautiful little face.  It just gets you, huh?  What a gift God is giving us!  So these are for you!

  And here are a few of my precious Jillian.  I completely understand why they shave their heads in the orphanages...but how I wish they wouldn't!

Don't worry, little one...we will let that hair grow.  Your big sisters can't wait to play with it!

Please continue to pray for our Savior to move the mountains to get these little ones home.  We have our final visit with the social worker on Monday.  I am praying that she will be able to complete the home study very quickly after that...then on to USCIS approval.

To Him be the glory ~

Thursday, January 1, 2015

Little ones needing families....

As I pray over my Jillian and Brooke ~ we have our paperwork ready to send to their country to get "PA" (preapproval) on Monday ~ I cannot help but be burdened to pray for some other precious lives so in need of families:

Meet Mikayla and Milo.  This dynamic duo is so precious to my heart as they have Apert Syndrome like my little dynamo, Serenity.  They both live in the same foster home.  How amazing it would be to have them adopted together.  Yes, these kiddos need quite a bit of medical intervention; but their amazing personalities and beauty make it so worth it.  Something that always strikes Handsome and I when we are at the doctor's office or hospital is the abundance of amazing medical resources we have here in the U.S..  They can do amazing things - relieving pain and pressure, restructuring and reshaping - the list goes on and on.  God is faithful - He will provide all you need if you are a disciple of His.  Please at the very least - because in reality it is the most powerful thing you can do - lift these children up in prayer.  

Then there is Ekko and Elliot.  Another pair together in the same orphanage.  Both have been blessed with an extra chromosome.  Both would be amazing blessings to a family following Christ's leading.

And another precious pair with Down Syndrome.  Lucy and Caden.  Both in the same orphanage.  Both Lucy and Caden are listed on Reese's Rainbow.  To see Lucy's file (called Mary Lauren) on RR, click here.  To see Caden's file, click here.  Both have grants that will help with their adoption costs.

And finally, little Rudy.  He also has Down Syndrome.  My kiddos love this little guy.  We are praying he is found by a family soon - he is such a treasure.  His file is also on RR here.

If you want more information on any of these precious treasures, please leave me a comment with your email address.  I will not publish it.

Please, please pray for each one.